We are back in Cincinnati for around 36 hours so that Mary can have a 24-hour EEG. Here she is with her new hat:
Don’t let the picture fool you. She was not impressed with the nice ladies who had to glue almost 50 electrodes to her head. We made it through, though, and she’s doing great.
A 24-hour EEG is used to help understand the patients brain activity. Over half of the kids with CFC suffer from regular seizures, and we have seen a variety of seizure-like episodes with Mary. So we are having her go through the test now to see if there is anything we can do to help her face this potential challenge.
Thank you for all your love and prayers!